The voice of Parents/Carers of Children with Disabilities and SEN aged 0-25 in the London Borough of Hillingdon
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All these links open in a new window/tab. While we are happy to share knowledge and information with you, our Parents/Carers, it's your choice as to whether you make contact with the providers and use the services they are offering.
Centre for ADHD and Autism Support ~ a well established local charity [charity reg: 1080795] that has been in existence since 1996. The aim of the charity is to support parents, carers professionals and individuals affected by a diagnosis of Attention Deficit Hyperactivity Disorder [ADHD] and/or Autism Spectrum Disorder [ASD] by bringing a range of expertise and experience under one umbrella.
Cerebral Palsy Guidance ~ was created to provide answers and assistance to parents of a child with cerebral palsy. Our goal is to reach as many members of the cerebral palsy community as possible, building up a network of support, as well as providing necessary assistance.
The Challenging Behaviour Foundation ~ The Challenging Behaviour Foundation (CBF) was founded in 1997 by Vivien Cooper OBE, the parent of a child with severe learning disabilities and behaviour described as challenging.
DASH ~ Disablement Association Hillingdon known more commonly as DASH, was formed in 1984 and is a user-led charity based in Hillingdon, West London. They provide advice, support and activities that allow disabled people to take control of their lives and become more independent, confident and part of the community. DASH is an inclusive organisation and promotes independence to every individual.
DisabledGo ~ Our mission is to provide independence and choice to disabled people in the UK. Working on behalf of a wide range of clients from both public and private sectors, we provide fine-grain access information to over 120,000 places of interest across the UK and Republic of Ireland. We also offer a comprehensive range of inclusive and accessible solutions enabling organisations large and small to better understand and meet the needs of disabled customers and employees.
Here you will find answers to questions that we are often asked about Down’s syndrome. This information will help you to separate the facts from some common misconceptions. If you do not find what you are looking for ring our helpline and speak to one of our specialist advisors.
Dyspraxia Foundation local group middlesex~ A local support group for the Dyspraxia Foundation run by Wendy Caines. Monthly meetings and support. For more information Email or call 07544 452031.A local support group for the Dyspraxia Foundation run by Wendy Caines. Monthly meetings and support. For more information Email or call 07544 452031.
Karers 4 Kidz ~ Karers 4 Kidz began in October 2000 at a coffee morning in Ickenham. Katrina & Chris Bijowski, the parents of a daughter with cerebral palsy, invited other parents to their home to discuss their concerns about the local authority’s proposal to re-structure the respite care service for children.
Kids ~ We care for over 8,000 disabled children, young people and their families every year by delivering around 140 services across England. Our work helps disabled children and young people to gain independence, social skills and self confidence. We are very proud of the reputation of the services that we deliver to disabled children, young people and their families. We are passionate about making a life changing difference to the lives of disabled children and young people along with their families
Link Counselling Services ~ Link Counselling is a self referral agency for young people aged 13-25 years who live, work or study in the borough. We offer counselling for young people with emotional / mental health distress. The service offered is confidential and no information regarding a client will be shared unless there is a legal obligation or serious risk to the client or another person. We are staffed by one full time manager/counsellor/supervisor and two part time counsellor/supervisors. We have at the present time 25 volunteer counsellors who give a minimum of three hours of their time each week to Link over a minimum of two years. They are carefully managed and supervised regularly according to Link and BACP guidelines. We work to guidelines set out by the British Association of Counselling and Psychotherapy. We work with all youth agencies/service (e.g. youth centres, Kiss, Sorted), GP's, Camhs, Adult mental health services, Social Care, Ayslum Team, Schools. - 018958 277222
LIttle Specials ~ a nonprofitable organisation to support children with special needs and their families. Meet at Oak Farm library, saturday afternoons (term time) 2-3.30pm Cost - FREE
Orchyd ~ a registered charity which provides an annual residential holiday for children with disabilities. We aim to produce an unforgettable ten Days in August for twenty children from around the UK.
It was initially set up in 1971 when a collection of like-minded people from the Ruislip Christian Council and the charity Scope (formerly the Spastics Society) got together to organise and run a holiday for physically disabled children based in Ruislip, West London. Although a lot has changed in the last three decades - Scope are no longer involved, DBS checks are imposed and the coach has an iPod dock - the core purpose is the same; to provide an amazing ten-day holiday for twenty physically disabled children.
P3 Charity ~ We’re a charity and social enterprise, made up of passionate people, who care about people. We run a variety of services all over the UK, that aim to give everyone the chance to be part of the community they live in and feel connected to society. We think that everyone is unique and with support and confidence, can unlock their potential within, opening up a world of possibilities. Oh and did we mention that we love people?
PDA Society ~ The organisation was first established in 1997 by parents of children with Pathological Demand Avoidance (PDA), an autism spectrum condition. The PDA Society became a registered charity in January 2016. We provide information, support and training for parents, carers, teachers and individuals with PDA.
Preparing for Adulthood ~ The partnership brings together a wide range of expertise and experience of working with young people and families, at a local and national level and across government, to support young people into adulthood with paid employment, good health, independent living and friends, relationships and community inclusion.
The Preparing for Adulthood team previously worked on key transition programmes including the Transition Support Programme, Valuing People Now, Valuing Employment Now (Getting a Life project, Jobs First, Aspirations for Life and Project Search) and Learning for Living and Work.
Explore the College's current strategic plan as well as our governance and staff structures. Find out about our activity across the four nations and globally. And, see how you can get involved through nominations for College posts, fellowships and prizes.
RSBC ~ We are on a mission to make sure every single blind child has the self-belief and skills to fulfil the potential we know they’ve got.
On the 1st January 2017 the Royal Society for Blind Children (RSBC) and Royal London Society for Blind People (RLSB) joined together to create a leading charity in England & Wales dedicated to achieve this goal. The new charity is privileged to have the patronage of Her Majesty The Queen.
We are an ambitious charity; by 2020 we want to have helped 11,000 blind and partially sighted children and young people in England and Wales.
SENDirect ~ In 2011 nine of the leading charities in the disability sector decided to start working in partnership in order to collaborate on the development of new products and services, to meet the growing and changing needs of children and young people with special educational needs and disabilities and their families.
SENDIASS ~ The Service provides legally based, impartial, confidential and accessible information, advice and support for parents of children and young people with SEN or disabilities, about education, health and social care. The service can offer face to face, telephone advice as well as casework and representation when needed. We offer support to parents of children with special educational needs and those who have been excluded or are at risk of being excluded from school. The Service will often work with parents and children/young people together but will also provide a service directly and separately to young people aged 16-25.
SENTAS ~ We have in-depth knowledge and expertise on the government guidance surrounding SEND home to school/college transport. SENTAS supports both parents of children and young people themselves, who have physical or learning disabilities, with the process of appealing incorrect Local Authorities decisions that refuses to provide funded transport. We will take away the stress and hassle of appealing Local Authorities decisions to get your child the service they are entitled to.
The Special Needs Jungle ~ We decided to become a not-for-profit organisation in 2014 because we wanted to be able to raise funds to expand on activities providing resources, training and information for parents and carers of children and young people with special needs and disabilities.
Many families do not get the help they need because they do not know where to look or how to cut their way through the increasingly complicated system. We aim to highlight resources and inspire and empower families to do this successfully by providing resources, tips, facts and examples.
VoiceAbility NHS Complaints Advocacy Service ~ NHS complaints advocacy service can help you if you, or someone you know, has not had the care or treatment you expect to receive from your NHS services and you want to complain.
Other Useful Links
Thumbs up ~ Monthly support group at Colham Manor Children's Centre for parents of young children with Downs Syndrome.
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